Round 2!

I went in for my second round of Botox injections into my neck and shoulders. I always think I’m prepared when I go in for the mix of pressure, pain, and burning feeling. It has caught me off guard both times now. Don’t get me wrong it is so worth it when the injections kick in. Just the first couple days and the actual injecting into my muscles suck.

They used 200 units this time. They used 110 units on just my left capitis muscles and the left scalene. Then put 70 units into my right trapezius, and 20 units into my right levator.

I always take my boyfriend with me to appointments because…

1. For moral support.

2. Because of brain fog, I forget things

3. Because on the days I have injections I don’t physically want to move afterwards due to pain.

Also he’s nice to look at when I’m in pain

The next couple days to week will be telling as to how well it’s working. I’ll feel like I have the flu for a couple days and then the good effects will kick in (hopefully). I could really use some good effects right now.

In the meantime I’m also try to get the rheumatologist on the line to schedule an appointment. My joints have been so angry lately. I came home from work a week ago and went straight to bed, even my finger joints were hurting. That absolutely terrifies me. That was the first time I had finger joint pain. I’m scared. I don’t want this pain forever. I want answers. I’m hoping I’ll get some soon.

Be kind. Be Helpful. Be the force of good you want to see in the world. #BlackLivesMatter

I took a DNA test…

Turns out I’m 100% that impatient.

I spit into the tube, I put it in the mailbox this morning. Now we wait. I still have a headache and more neck/back pain this morning. I am going to be anxiously awaiting these results.

I also looked into filling my migraine medication, as I have a prescription at the pharmacy. I thought maybe if it was reasonable I’d just pay it out of pocket. That was a big fucking nope. The price was outrageous and that was even using GoodRx. So I’ll wait till Friday, have my neurologist get it preapproved again through insurance and then hopefully have a reasonable cost on it.

I’m just sitting down to work so for the next 8 hours I’ll be working on a project simultaneously while doing my regular work. I’ll of course post this project here later once it’s done as it’s for you all and me.

Have a rad day x

Back by popular demand

So I know I mentioned in the first post that I am HORRIBLE at remembering to post on a daily… weekly… or even monthly basis. I am telling myself I will be better at this. So here we go. Things that have happened since the last post….

I got the Botox injections into my neck and shoulder. 100 CC, the lowest dosage. The effects lasted for about 3 weeks maaaaaaybe 4 weeks and now I am back to daily intense pain and even mind splitting headaches. I need to remember to write down my daily problems.

I also had my 4 month check up with my PCP and he tested me for RA. It came back negative which was very disheartening. My joints have definitely gotten worse in the past year (my knees, my elbows, hips, and ankles). I did just purchase one of those 23 and Me for the health testing. I curious to see the results it gives.

I am still going to work everyday, as I am considered essential. I am working in medical records in a Cardiology office. Unfortunately for me and fortunately for anyone who goes to a healthcare provider it is against HIPAA for me to work from home and have any HIM out of the facility.

I know this update isn’t much but it is where I am. Also my head is killing me today. I have been off of my Amovig and Trokendi due to switching jobs and now I am waiting for my new insurance to kick in (May 1).

If you have ideas of posts you would like to see or questions post them below. I hope you all have a safe and happy week x

The tale of the never ending migraine and some other random shit

It has been a hot minute since I posted. The reason for that is because of my never ending migraine. 5 DAYS! 5 DAYS of the left side of my head from the base of my skull to my teeth. 5 days of blurriness, pain, nausea, unable to comprehend thoughts or remember words. 5 days of shying away from any and all lights. 5 days of torture.

Monday – Day 1

I am trying to keep everything as documented as possible, from using a daily pain journal to pictures. I have my neurology appointment coming up and I am sure many more appointments after that. I have to tell you, because I have essentially hidden my pain my whole life from people, that I am getting skepticism from some. I figured this was going to be my lot in life, pain forever. You know what, it still probably will be, but I am proud of myself for speaking about it now and seeking help.

Migraine Day 3

Midway through the week, I was still pushing myself to get up and go to work everyday. I was useless at best there but I have no PTO or the time that I do have is already set aside for doctors appointments so I pushed through. It has been one of the hardest weeks I have had in a long time. By Thursday I was desperate for relief, I didn’t care in what sense but I needed the pain to stop. Unfortunately that relief would be short lived, I am not sure what made my brain stop trying to escape from my skull but I got about 3 hours of relief on Friday morning and was so excited that the pain had broke. It was short lived though, by Friday afternoon I felt like tearing my hair out .

This was Friday on my lunch break. I went to my car and just laid down.

Saturday we had a lay in day with the kids. Pajamas, movies, and board games and naps. It was what I needed. One day of “relaxing” or as relaxing as life can be with 3 kids (11, 8, 7 ). I have to say it certainly was a rough week, ending it on a nice note made me happy.

I have been struggling with self doubt. I know physically the pain I feel but I keep having nagging thoughts “What if the doctor doesn’t believe me? What if they don’t help?” It is scary that this upcoming appointment may not be helpful. The what ifs are what keep terrified. I wish I could stop them, but I don’t think they will stop until I actually get there and have the appointment.

I am not sure how to end this post. It is very much a hodge podge of thoughts and word vomit. Sorry for that I have had a tough go of organizing my thoughts recently. I hope your week is fab!